The internet has changed how we connect. You or your child may keep in touch using e-mail or texting. You might use TikTok, Instagram, or Snapchat. Maybe you and your child watch videos on YouTube. Being online can help you feel less alone, but the internet can be harmful, too. Below are ways to be safe while being online.

This section of Next Step covers the following:

Online Information and Sharing

Keeping Your Child or Teen Safe While Online

Online Information and Sharing

The internet has changed the way people with bleeding disorders connect and build a social support community. Many people with bleeding disorders keep in touch using e-mail, texting, Twitter, Facebook, Instagram, TikTok, Snapchat, Zoom and Skype. Technology is a great way to connect with friends and can help your child feel less isolated. The Internet can be a helpful tool as long as you and your child take a few precautions.  

Be mindful of what you share online about your child with a bleeding disorder. Now that they are older, they should be part of the conversation about what they do or do not want you to share about them and where it gets shared. Check out additional things to keep in mind when posting about your child and/or their bleeding disorder on social media or online.

Keeping Your Child or Teen Safe While Online

Here are some tips on keeping your child or teen safe while online:

Set parental controls and privacy settings.

Install parental controls on all devices. These are settings that limit what your child can see or do online. Privacy settings determine who sees information about your child.

Monitor apps and downloads.

Make sure you look at the age ratings of games, apps, shows etc. There are also safe search engines and kids’ versions of apps you can install.  

Explore online together.

Have your child show you what they usually do on their device. Your child may already have knowledge or ideas about how to be safe online. You can use their knowledge and together explore how to be safe online as a family. Discuss and show your child how online scams may appear and how to avoid them, as well as your family rules and protections around making purchases online. 

Talk about safe use.

Talk to your child and teen about how to safely use the internet. This includes not answering messages from people they don’t know and telling an adult if this happens. It also means not sharing personal information online and talking about how to use social networking safely. Talk often and openly with your child or teen so they know they can come to you with questions and concerns. 

Say No to Online Bullying.

Bullying can happen inside and outside the classroom. Talk to your child and teen about cyberbullying and what to do if they are cyberbullied or see it happening. Talk to them about how cyberbullying can harm others even if you can’t see their face.  

Watch for signs that something might be going on with your child or teen.

Changes in behavior, possible self-harm, losing interest in usual activities or friends can all be signs something is off for your child. It might not be related to their online activity, but it is worth discussing what you notice and reminding them you are there to support them.

Be mindful of what you are posting online.

Especially for teens, have a conversation with them about their posting online content. Let them know that the information they post may also be seen by the general public, including potential employers. Think about what you would be okay with other people outside of family and friends knowing about you. Maybe you don’t mind this information being online now, but will it bother you in a few years? Always keep this in mind before posting. Along these lines here are a few other tips to think about: 

  • Use privacy settings  
  • Don’t share your passwords with friends or let unknown people use your personal devices.  
  • Don’t share your location or personal information 
  • Don’t post harmful content about others.
  • Think through the language you are using: is it something you would mind an employer seeing? Is it inclusive and kind? Does it align with who you are? 
Use your judgement about information you are getting online.

It is important to be an informed user when online. This includes when you use the internet to research treatments, products, protocols, symptoms, etc. While it’s tempting to find answers to your health-related questions online, always be aware of the sources you are getting your information from. Anyone can post anything online, and information found online may not be factually accurate. Always ask your parents or caregivers and health care provider for the most accurate information when it comes to your health. The best way to get accurate information is to bring any questions or concerns to your health care provider or Hemophilia Treatment Center (HTC).  

Encourage them to come to you with any online concerns.

Kids and teens need to know what to do if they do see something that makes them uncomfortable or makes them worry about the safety of themselves or someone they know. Reassure them that you will support them and not judge them if they come to you. If not you, offer other trusted adults they can go to.  

Create a social media contract with your children or teens to monitor their online behavior.

After discussing safe practices like the above, a helpful idea is to come up with a contract of agreed upon ‘rules’ between you and your child/teen about their online behavior. Examples of things to include in the contract are:  

  • Use the right privacy settings  
  • Don’t share your password with anyone or let unknown people use your personal devices  
  • Don’t share your location or personal information  
  • Discuss and agree on how, if at all, you are going to talk about your bleeding disorder 
  • Use respectful language that doesn’t harm others. No bullying or posting harmful content about others 
  • Dress code 
  • How often they can use their online devices 
  • What apps and websites they are/are not allowed to use 
  • Not responding to messages from people they do not know and letting a trusted adult know if they get inappropriate messages 

You can add or take away from this list depending on your situation and the age of your child/teen. The American Academy of Pediatrics Family Media Plan Tool helps you build a custom media plan for your family (it includes social media too). 

Stay up to date.

The latest trends for kids and teens can feel hard to keep up with. Continue to do your own research to best support your child. Here are some organizations that can help: